It has been a week of birthday celebrations at our house! Lucy is doing fantastic. She is happy, energetic, and charming as can be. Today she turned four years old, and celebrated by going to preschool in the morning, then to a movie, in a crowded theater. We couldn’t even imagine this six months ago. What a blessing!!!
Next week Lucy and I will go to KC for her 15 month post transplant check up, which will include the standard blood and bone marrow testing, as well as a check in with endocrinology and hopefully some allergy testing. Lucy’s food allergies have simmered down significantly. I hope to have blood tests for IGE levels to see how far things are settling, officially, since she is so far off ALL mediations now! At this point, her BMT doctor in KC has approved/requested that she have her port and g tube removed!! Perfect timing for t ball coming up this summer. Lucy has been doing so well, another big change had already happened … she has been seeing a regular pediatrician!! She has started vaccinations, finally, and actually had to go in for an ear infection recently. I’m sure I seemed like a lunatic because I was positively giddy about taking Lucy to the REGULAR pediatrician for some SIMPLE amoxicillin for an ear infection! Even Lucy was like “that’s it?”. We practically skipped out of there!
In anticipation of Lucy’s g tube removal we shipped back most of her feeding tube supplies. This pole was left behind and Lucy thought it was the BEST toy! She has no recollection of how much we hated being tethered to a pole!