Monthly Archive: October 2016


Third Time’s the Charm

30.10.2016 Posted in Uncategorized 8 Comments

After two postponements, first parainfluenza, then my virus paranoia when Lucy had the sniffles, Lucy finally had a bone marrow biopsy in Kansas City this week. Lucy went to clinic for labs and sedation for BMA on Wednesday and NOTHING else! It was a smooth, quick day … compared to our last visit (48 hours in the hospital)! Because of her very high risk (VHR – this is an actual category in treatment protocol), Lucy gets more bone marrow biopsies than some other transplant patients. Lucy has been acting and feeling FANTASTIC since ditching the meds, especiall tacrolimus, so we honestly weren’t feeling too worried, but leukemia is sneaky and really, I don’t think you can ever get used to a test to find out if your kid has cancer, again. Our prayers were answered yesterday, Friday, when we got a call from KC that Lucy’s test were all clear! No signs of leukemia and 100% donor!!! We’ve been pretty busy in the meantime …

   Lucy was bestowed the honor of being an artist at Art From the Heart at the annual fundraiser for friends of kids with cancer. She accepted her award of participation with her cotton candy in hand. 

  Violet and Lucy swarmed Tasha, the art therapist who shows us love and support at every clinic visit. Violet, especially benefits from her gentle care.

   Did you know we have two blood cancer survivors in our family? Celebrating survivors Amy and Lucy atLight the Night to support the LLS. And below is our KC team supporting Lucy. How luckt is this little girl?!!  
  Pumpkin patch!

   Happy birthday Violet! I reveal a pastry chef’s shame – candle in a chicken strip… and don’t care! Just beyond grateful to celebrated this birthday with my girl, at home. 
  Godzilla has all the right moves at Grants Farm 

    She makes a cute pizza … Too bad she’s dairy intolerant. 
 Lucy woke up from sedation in a great mood!! She was cracking us up, eating goldfish before she could even speak! 

 This is a perfect description of their opposite feelings about scraping the pumpkin guts.