After two postponements, first parainfluenza, then my virus paranoia when Lucy had the sniffles, Lucy finally had a bone marrow biopsy in Kansas City this week. Lucy went to clinic for labs and sedation for BMA on Wednesday and NOTHING else! It was a smooth, quick day … compared to our last visit (48 hours in the hospital)! Because of her very high risk (VHR – this is an actual category in treatment protocol), Lucy gets more bone marrow biopsies than some other transplant patients. Lucy has been acting and feeling FANTASTIC since ditching the meds, especiall tacrolimus, so we honestly weren’t feeling too worried, but leukemia is sneaky and really, I don’t think you can ever get used to a test to find out if your kid has cancer, again. Our prayers were answered yesterday, Friday, when we got a call from KC that Lucy’s test were all clear! No signs of leukemia and 100% donor!!! We’ve been pretty busy in the meantime …
Did you know we have two blood cancer survivors in our family? Celebrating survivors Amy and Lucy atLight the Night to support the LLS. And below is our KC team supporting Lucy. How luckt is this little girl?!!
Happy birthday Violet! I reveal a pastry chef’s shame – candle in a chicken strip… and don’t care! Just beyond grateful to celebrated this birthday with my girl, at home.
Godzilla has all the right moves at Grants Farm